Home

Welcome

Hereditary Fructose Intolerance (HFI) is a rare genetic disorder – only few people are affected by HFI. Pharmaceutical Industries have no interest in investing into further research; therefore it is very difficult for people like me, to find the necessary information in order to live a healthy life. Often information is not sufficient or even wrong.
This is the reason I started a blog with recipes for HFI affected patients – hopefully a helping hand for a healthy and well balanced diet. Nowadays it is especially difficult to find foods without traces of sugars (fructose/sucrose).

My dietitian supported me in writing an introduction. I would also like to thank her profoundly for checking all the posted recipes. Here is her intro:

People with the hereditary metabolic disorder Fructose Intolerance (HFI), have a limited selection of different plant foods available to them. Especially the consumption of fruits and sugared foods leads to serious health issues for the hereditary fructose intolerant. Also the consumption of potatoes, whole grains, legumes nuts and many vegetables are only possible to a limited extent.

This collection of recipes shows ways of not having to completely give up upon valuable plan compounds and dietary fibers, thanks to a targeted selection of vegetables and grain products. The varied recipes ease the practical implementation of nutritional therapy in everyday life. They invite you to try and enjoy.

Claudia Salvisberg-Jost
dipl. Ernährungsberaterin HF (Dietarian/Nutritionist)

I hope, affected HFI patients as myself will support this idea of our mutual concern, by developing this recipe collection and by raising the awareness of HFI.

Together we can ensure, that we all have a realistic chance of having a diversified culinary experience, without having to worry about fatal liver damages.

Thank you in advance for your inputs and support.

Sincerely,

Svenja

 

Disclaimer

These recipes have been checked by a dietitian yet any concerns, should be taken to a personal nutritionist, since no responsibility for the use of these recipes will be taken.

Advertisements

6 thoughts on “Home

  1. I think this is a very nice start. I would like to see even more recipes. My daughter has HFI and I something like this would have been helpful while I was trying to figure things out on my own.

  2. I’m so happy i found this website!!! I have a 9 month old baby which was diagnostic HFI…and it’s been so hard for me to cook for him… Thank you

  3. Thank you for posting. We spent the first 18 months of our son’s life trying to figure out what was causing his liver problems and hypoglycemia. Doctors knew nothing!! It was my gyn from Europe who first mentioned GSD which led us to HFI. I have been misled by several metabolic dietitians who treat HFI like diabetes, not realizing the intricacies of this disorder. I am looking for recipes and truly expert doctors/dietitians in the US. I was just lamenting to a friend yesterday that there may never be a “cure” because there is no money in the HFI diet.

    -Stefanie

    • Hi Stefanie,
      Yes doctors do seem oblivious to this intolerance as well as the rest of the world. I was only properly diagnosed at the age of 4 but luckily my mom had by then already figured out what foods I ‘liked’ and ‘disliked’. So I definitely understand what you must be going through.
      -Svenja

    • I’ve been living with HFI for 23 years and it’s clear that nobody seems to really understand it except those who actually live with it! Because of the plethora of misinformation out there, I’ve decided I’m going to build my own website with everything I’ve learned about hereditary fructose intolerance. I hope in doing so I can give parents like you somewhere to go to know how to care for your kids.

  4. I am an adult with confirmed HFI and I am needing to start making “healthier” food choices – ie- lose some weight. It is nearly impossible to find a food plan that is comparable with the needs of HFI. I have been to several dietitians (at a renowned metabolic disorder clinic and at an integrative medicine office). This is really challenging to find a variety of foods that are “heart healthy” and that support my goals of avoiding diabetes, etc…

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s